Developing Story | Ten Years of Grandmother's Dementia: The Bottomless Pit of Caregiving Leaves Father, in His Sixties, Depressed (AI Translation)
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摄影/撰稿|财新周刊 董德
Photography/Written by Dong De, Caixin Weekly
前年,我和父亲爆发了自我成年后最激烈的一次争吵,起因是奶奶的照护问题。
The year before last, I had the most intense argument with my father since reaching adulthood, sparked by the issue of caring for my grandmother.
奶奶是十年前患上痴呆症的。变故肇始于一次车祸,车轮碾过奶奶的脚,她不得不卧床几个月,再站起来时,脑子就变迟钝了。从医学的角度,很难将卧床和痴呆直接联系起来,但经历长时间卧床陷入痴呆的老人不在少数。或许是因为影响了血液循环,或许是对老人的心理打击太大,总之,事已至此。

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- A father in his sixties experienced depression while caring for his mother with dementia for a decade, highlighting caregiving challenges.
- Traditional beliefs in filial piety made hiring a caregiver difficult until family health issues necessitated the change, complicating caregiving with accidents and increased workload.
- Despite filial obligations, family debates arose regarding nursing home care, underscoring elder care difficulties and contrasting perceptions of dignity in aging and death.
[para. 1] The challenges of caring for an elderly family member with dementia were thrust upon a family when the grandmother was diagnosed ten years ago. This change followed an accident that left her bedridden, leading to a noticeable decline in her mental faculties. Post-accident, her mind regressed to childhood, and she developed symptoms such as coprolalia. Relatives, once respected, now found themselves caregivers, which was emotionally challenging, as the people they once relied on had transformed into versions they hardly recognized.
[para. 2] Initially, the family shared caregiving responsibilities: the grandfather and his brother managed daily shifts, while aunts pitched in on weekends. The burden intensified as the grandmother’s condition worsened, presenting not just physical but also emotional challenges. This transformation put a strain on familial roles and relationships, especially for the father, who was struggling to reconcile the grandmother he once admired with the person she became.
[para. 3] Caring for a child and an elder are disparate experiences, the father noted. Children offer hope and progress, whereas the decline in elderly relatives is disheartening and relentless. This sentiment weighed heavily on him, affecting his mental health. As his own health declined due to the caregiving stress, he succumbed to depression, which remained unaddressed for years. Eventually, life and circumstances forced a reevaluation of the family’s approach to care, leading them to hire external help to manage the day-to-day needs.
[para. 4] The family was financially capable of hiring additional help, such as a nanny. Yet, the father struggled with the traditional values of filial piety, feeling guilty about transferring the duty of care to someone else. This internal conflict reflected his deep-seated beliefs and fears about his mother's treatment at the hands of strangers. Despite their best efforts, the whole situation culminated in the family’s decision to hire a nanny out of sheer necessity, not preference.
[para. 5] This decision was catalyzed by the failing health of other family members who also shouldered the caregiving burden. The father, already in his sixties, and other older relatives were becoming incapable of sustaining the level of care needed. Hiring a nanny was inevitable, even if it went against the father’s ingrained principles. However, with the nanny in place, the family recognized the care was not the same caliber as familial care, often leading to accidents and increased strain on family members when the nanny was unable to manage tasks alone.
[para. 6] The father’s reluctance to send the grandmother to a nursing home stemmed from concerns over the quality of care and his perception of such facilities as places where "people go to die." Comparatively, professional nursing homes in larger cities were viewed more positively but remained logistically and culturally out of reach for the family. The father’s reflections on elder care and end-of-life decisions revealed a pragmatic acceptance and desire to avoid prolonged suffering for himself and his kin.
[para. 7] As the grandmother’s dementia progressed, she became mostly uncommunicative. In one moment of clarity, she recognized her grandson, offering a moment of emotional connection. However, these moments were fleeting, emphasizing the long-term emotional and psychological toll such illnesses impose on families. Throughout the narrative, the impact of traditional values versus practical caregiving needs was explored, highlighting the difficult choices families face in managing elder care.
- 2015:
- Grandmother was diagnosed with dementia.
- Around 2020 or 2021:
- Father's condition visibly worsened, showing signs of depression.
- 2022:
- Father was diagnosed with depression after a comprehensive examination.
- The year before last, 2023:
- Family experienced an intense argument about caregiving; Grandmother became bedridden and her cognitive abilities declined faster.
- Lunar New Year of 2025:
- It marks the tenth year of Grandmother's illness.
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